Mothering & Albinism

Puleng Molebatsi, a person with albinism, is a radio and television content producer, actor, and activist in South Africa. She is well known as the radio host to “The Out and About and Tech Africa” on Channel Africa. This year, 2023, in partnership with the Mothering and Albinism research project, she directed the film titled… Continue reading Film Project: A Conversation with Puleng Molebatsi in Filming “Mothering and Albinism in South Africa”

As a network of scholars and advocates from multiple disciplinary fields and various sectors, we are bringing our knowledges and skills together to address a complex problematic, that of protecting and promoting the human rights of mothers impacted by albinism. This challenge cannot be solved by any one disciplinary stance, methodological approach or practical skillset.… Continue reading The strength of our research-advocacy-policy network in action: Reflections on our Engagement Workshop in Pretoria, October 2-4, 2023

The Mothering and Albinism Research-Advocacy-Policy Network facilitated a Public Forum in Pretoria on October 2nd, 2023 to share the findings of our project on the resilience of South African mothers affected by albinism, whether they have albinism themselves or have children with albinism. The Forum was in partnership between the University of Pretoria's Health Science department… Continue reading Mothering and Albinism: Public Forum in Pretoria, South Africa

An exciting aspect of our Birthing Stories project is the involvement of undergraduate and graduate students as interns. In 2023, students from Ghana and Canada will work with researchers and advocates to learn firsthand about how research can contribute to the protection of human rights for mothers impacted by albinism. The interns will engage in… Continue reading Birthing Stories Project: Student Interns 2023

Research on siblings and albinism, the focus of my (Meghann Buyco) recent thesis, is long overdue. There has been increased global attention and research on albinism but very little remains known about the experiences of albinism between siblings. Thus, this past year, I was privileged to hear persons with albinism and their siblings share their stories… Continue reading Conducting Research on Albinism and Siblings in Africa: Reflecting Deeply on my Positionality

The International Council of Nurses (ICN, n.d.), a federation of more than 130 national nurses associations, hosted this year’s Congress in Montreal, Canada with an attendance of about 6,000 nurses from all over the world (ICN, 2023). Our Mothering and Albinism team presented our important research work on albinism and human rights through a presentation… Continue reading Presenting on Albinism at the International Council of Nurses 2023

I (Ingrid Watts) began my final year of my Master of Science in Nursing Degree at Trinity Western University knowing that I wanted to focus my capstone project on global health and mother/child health. Dr. Reimer-Kirkham, my supervisor, invited me to complete a Knowledge Translation (KT) project related to the Mothering and Albinism project. Given… Continue reading Respectful Maternity Care and Albinism: A Knowledge Translation Project

Listening to the stories of mothers who have given birth to a baby with albinism is an obvious place to start the next chapter of our research on A Human Rights and Equity-Oriented Response to the Birth Stories of Families Impacted by Albinism in Africa (see here for more information). We recently gathered with mothers,… Continue reading Birthing Stories Sharing Circle

Photo Credit: White Ebony Collection Multiple planetary challenges face humanity, including the COVID-19 pandemic, climate change, and biodiversity loss, which intimately affect the health of people and the planet Climate change is considered the greatest health threat of the 21st century. People living with disability, poverty, and unemployment are further structurally and disproportionately impacted by the… Continue reading Climate Change on Persons with Albinism